Welcome

Welcome to the blog site of EastMidlands-RSN, the Research Support Network of people with Parkinson’s and researchers in our region.  We provide a platform for you to hear about recent developments in Parkinson’s research, express your views and opinions, and debate the implications and prospects.

Having Parkinson’s is a process of facing ever new questions and trying to find answers:

  • What does research say about whether to take my medicines before or after a meal? How do I best monitor this myself?
  • How do I volunteer for a trial in one of the 14 Parkinson’s research projects in the East Midlands or relevant national ones?
  • What gadgets exist to help me cope better with ‘freezing’?

The EastMidlands-RSN, part of Parkinson’s UK, provides a platform for people interested in Parkinson’s to share their questions and answers so you’re not left to use guesswork and struggle in isolation.

EastMidlands-RSN and its Steering Group bring together:

  • people with Parkinson’s and carers who want to know more about the condition and how best to live with it, about trials, ongoing research and findings
  • academics, students and clinicians who want to share their work and results with peers and people with Parkinson’s and to involve them in their feasibility studies, trials and research programmes.
  • health professionals and other interested people such as speech therapists, physiotherapists, occupational therapists and pharmacists.

In every year since 2011 the EastMidlands-RSN has organised an annual Research Forum, growing from 50 to 120 participants, and an East Midlands Researchers Meeting to develop better communication and links between the professional researchers in particular.

 

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This blog is maintained by a team made of volunteer editors and an administrator. We would encourage you to contact us if you would wish to contribute articles to this site.

Leave your comments with the blog, contact us by either leaving a comment in this page or via email (eastmidlandsrsn@gmail.com) and join us in supporting Parkinson’s research!

3 comments

  1. Very pleased to have been to the conference Saturday, impressive content and turn out, and to have met Lionel and Deb although shorter than we would have liked Note. Must take tablets wherever we go!!! regards, John and Joy Miller.

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  2. Hi..i just want to thank you for doing a wonderful job… I’m from Leicester, but now been in Cape Town 16 years.. In that time my family told me that my Mum has Parkinson’s..i was very upset and worried as we are a very close family.. I didn’t know Much about Parkinson’s… So I would ask my brothers all the time how is mum doing? They would reply she is fine… But I noticed the difference every year when they came to visit me…. At first I thought she was getting worse each year, but with her visits to hospital every six months. This year when she arrived I was Very pleased with her.. She looked stronger… In herself… My mum is the best in this world so thank you for all your research…. Matthew Bryan…X

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